10th Anniversary

I cannot believe it. Honestly. On Saturday, June 20th, we completely missed the 10th Anniversary of Bella’s Kidney Transplant. Missed it. Woosh. Is that a good thing? I guess it is in the sense that life has moved on. And we are living it. And Bella is doing well. My body knew, however. I felt like crap on Saturday and could not figure out why. Now I know. Ten years ago. Ten years ago, early in the morning, I watched as the two people on earth I loved the most […]

Read More →

10.

My daughter turns 10 years old one week from today. My entire week has become devoted to planning the ultimate Minecraft party. We celebrate birthdays quite enthusiastically around here. Let me tell you why.   My Bella is a medically fragile child. I just learned that term about a year ago when a professional referred to her as such. So, there you go – a medically fragile child. Bella has Congenital Nephrotic Syndrome of the F1 variety – basically, the most rare. You can google it. Keep tissues handy if you […]

Read More →

Scars

Yesterday, on Facebook, a pastor wrote the following:: Don’t hide your scars. They are a testament to God’s grace and your fortitude. Our scars can even serve as encouragement and wisdom to many.   When Bella had her broviac catheter inserted into her vena cava, one of my first questions to the surgeon was :: “Will there be a scar there? Do you think it would be visible when she is wearing a prom dress?” Admittedly, a strange question. And the surgeon was very gracious in receiving such a question and in answering in such a way to bring a mother comfort. Why is it that scars – whether they be external or internal – are such a source of shame? The reality is, EVERYONE has them. Not one person is immune to it. Not one. And yet – we can become almost manic in our desire to hide them. Bella had a doctor’s appointment today. Molds were taken of both her feet, which in two weeks time, will become inserts she will need to wear in her shoes. And she will need these basically for the rest of her life. And we will start physical therapy as well in order to help Bella learn how to walk correctly – for the first time – without pain or unnecessary strain. We were reminded today that although the surgery will allow for some correction, for her not to be in pain […]

Read More →